UK Cystic Fibrosis Database

The UK CF Database in Dundee closed in 2007

Each clinic received a full copy of data for all their patients. Anonymised UK data were sent to the CF Trust and Anonymised Scottish data to NSD

Our group next developed a European demographic CF registry with data for over 29000 patients from 35 countries

(see www.lancet.com/audio and select from Audio Archive the podcast for March 20, 2010 - Comparison of EU and non-EU cystic fibrosis registries. See also publication McCormick et al. (2010) Lancet 375: 1007–13). For all subsequent publications or for further information about the European demographic CF registry, please contact Dr Anil Mehta, a.mehta@dundee.ac.uk