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UK Cystic Fibrosis Database

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Neonatal Screening
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Neonatal CF Screening

UK | North America


The UK CF Database played a key role in the submission to the Government about the potential benefits from genetic screening for CF at birth. As a result, neonatal screening for CF was introduced in Scotland in February 2003, to be followed by England. Information on all babies tested positive for CF is recorded on UK CF Database forms and forwarded to the national team in Dundee. Here, screening information is linked to the patient’s subsequent treatment and progress as recorded in the Database. Thus the Database will be invaluable in monitoring the efficacy of newborn screening for CF in years to come. Equally, it will be utilised to ensure optimum funding, resource and care for screened infants.

North America

The Scottish and UK experience led to a request from the North American Government to help with their screening programme. Our work showing the benefits of newborn screening was reviewed by the United States administration at the Centers for Disease Control and Prevention (CDC) in Atlanta and as a result, the Director of the UK CF Database was invited to represent the UK at the CDC decision-making body. Details can be viewed on the CDC website www.cdc.gov/ncbddd/cf/meeting.htm. The proceedings will be published in the Journal of Pediatrics in 2004.



Created and Maintained by: N. Mehta

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