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UK Cystic Fibrosis Database

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Publications | Reports to National Bodies/Governments

Publications

Publication from our work on the European demographic CF registry

Jonathan McCormick, Gita Mehta, Hanne V Olesen, Laura Viviani, Milan Macek, Anil Mehta (2010) on behalf of the European Registry Working Group.Comparative demographics of the European cystic fibrosis population: a cross-sectional database analysis. Lancet 375: 1007–13.

For all subsequent publications or for further information about the European demographic CF registry, please contact Dr Anil Mehta, a.mehta@dundee.ac.uk

 

Publications from our work on the UK CF Database

  1. Mehta A (1996) Data Standards in Cystic Fibrosis Workshop. Israel Journal of Medical Sciences Vol 32:S177- 9.
  2. Johnson, MJ, Robertson KJ, McCowan C, Ricketts I, Croll J, Olver RE, Mehta A (1996) Demographics and Clinical Characteristics of the Scottish Cystic Fibrosis population in 1994. Israel Journal of Medical Sciences Vol 32:S261.
  3. Muhsin F, Johnson MJ, Ricketts I, Mehta A (1997) A Platform-Independent Solution for the Tracking of Chronic Diseases. In: Towards an Electronic Health Record Europe ’97, p267-9. Med Records Inst Publication (ISBN 0-9640667-3-4).
  4. Duncan LS, Muhsin F, Mehta G, De Winton C, Mehta A (1998) User friendly Data Analysis Tools linked to a Microsoft Access Database. In: Towards an Electronic Patient Record. TEPR-98, 1, p76-83. Med Records Inst Publication (ISBN 0-9640667-4-2).
  5. Duncan LS, Muhsin F, De Winton C, Scott J, Mehta A (1998) Clinical Data Verification tools for the busy CF Carer Tailored to the Clinical Environment. In: Toward an Electronic Health Record Europe, p269-273. Med Records Inst Publication (ISBN 1-893378-00-4).
  6. F. Culross, Duncan LS, Muhsin F, Mehta G, De Winton C, Mehta A (1998) Computers Evidence-Based Medicine and Chronic Disease: A Model for the Future? In: Toward an Electronic Health Record Europe, p269-273. Med Records Inst Publication (ISBN 1-893378-00-4).
  7. Mehta A (2001) Further Comments on Fibrosing Colonopathy Study. Lancet 358:1546-7. (Letter).
  8. McCormick J, Green MW, Mehta G, Culross F, Mehta A (2002) Demographics of the UK cystic fibrosis population: implications for neonatal screening. Eur J Hum Genet 10:583-90.
  9. Mehta G, Sims EJ, Culross F, McCormick JD, Mehta A (2004) Potential advantages of the UKCF Database. J R Soc Med 97:60-71.
  10. Mehta A (2004) Cystic Fibrosis and Newborn Screening and the Detection of Carriers. Arch Dis Child Fetal Neonatal Ed 88(6):448-449. (Letter).
  11. Boyd JM, Mehta A, Murphy DJ (2004) Fertility and pregnancy outcomes in men and women with cystic fibrosis in the United Kingdom. Human Reprod 19(10):2238-43.
  12. McCormick JD, Ogston SA, Sims EJ, Mehta A (2005) Asians with cystic fibrosis in the UK have worse disease outcomes than clinic matched white homozygous Delta F508 controls. J Cyst Fibros 4:53-58.
  13. Sims EJ, McCormick JD, Mehta G, Mehta A (2005) Neonatal screening for cystic fibrosis is beneficial even in the context of modern treatment. J Pediatr 147 (Suppl 3): S42-S46 (special issue on CF screening).
  14. McCormick JD, Sims EJ, Green MW, Mehta G, Culross F, Mehta A (2005) Comparative analysis of cystic fibrosis registry data from the UK with USA, France and Australasia. J Cyst Fibros 4(2):115-22.
  15. Sims EJ, Green MW, Mehta A (2005) Females, but not males, with established cystic fibrosis related diabetes associate with worse lung function. Diabetes Care 28:1581-7.
  16. Kastner-Cole D, Palmer CNA, Ogston SA, Mehta A, Mukhopadhyay S (2005) Overweight and obesity in Delta F508 homozygous cystic fibrosis. J Pediatr 147:402-404.
  17. Sims EJ, McCormick JD, Mehta G, Mehta A (2005) Newborn screening for cystic fibrosis is associated with reduced treatment intensity. J Pediatr 147:306-311.
  18. McCormick J, Sims EJ, Mehta A (2006) Delayed diagnosis of females with a purely respiratory presentation of Cystic Fibrosis does not segregate with poorer clinical outcome. J Clin Epidemiol 59:315-322.
  19. Sims EJ, Clark A, McCormick J, Mehta G, Connett G, Mehta A (2007) Cystic fibrosis diagnosed after 2 months of age leads to worse outcomes and requires more therapy. Pediatrics 119:19-28. Highlighted in accompanying Editorial on pages 156-7 of the same issue.
  20. McCormick J, Conway SP, Mehta A (2007) Paediatric Northern Score Centile Charts for the Chest Radiograph in Cystic Fibrosis. Clin Radiol 62:78-81.
  21. Sims EJ, Mugford M, Clark A, Aitken D, McCormick J, Mehta G, Mehta A (2007) Economic implications of newborn screening for cystic fibrosis. Lancet 369:1187-1195. Highlighted on cover with associated commentary.
  22. Mehta A (2007) Global perspective on newborn screening for cystic fibrosis. Curr Opin Pulm Med. 13(6):510-4. (Invited refereed review).
  23. Carlo Castellani et al. (2009) European best practice guidelines for Cystic fibrosis neonatal screening. J Cyst Fibros (multi-author consensus statement) 8(3):153-73.

 

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Reports To National Bodies/Governments/European Commission

  1. Scottish CF Database Report to Clinical Resource Audit Group (CRAG) (1994).
  2. Scottish CF Database Report to CRAG (1995).
  3. Scottish CF Database Report to CRAG (1996).
  4. Scottish CF Database Report to CRAG (1997).
  5. NSD Scottish CF Database Report (1998).
  6. NSD Scottish CF Database Report (1999).
  7. NSD Scottish CF Database Report (2000).
  8. NSD Scottish CF Database Report (2001).
  9. NSD Scottish CF Database Report (2002).
  10. NSD Scottish CF Database Report (2003).
  11. NSD Scottish CF Database Report (2004).
  12. NSD Scottish CF Database Report (2005).
  13. NSD Scottish CF Database Report (2006).
  14. 40 Specialist CF Centre and CF Clinics Reports (2001).
  15. 60 Specialist CF Centre and CF Clinics Reports (2002).
  16. 65 Specialist CF Centre and CF Clinics Reports (2003).
  17. DoH special report on the efficacy of neonatal screening in the UK (CF Trust, on file).
  18. UKCF Population 2000: Focus on Pseudomonas Infection. (University of Dundee and CF Trust Publication).
  19. UKCF Population 2001: Annual Data Report (University of Dundee and CF Trust Publication).
  20. UKCF Population 2002: Annual Data Report (University of Dundee and CF Trust Publication).
  21. UKCF Population 2003: Annual Data Report (University of Dundee and CF Trust Publication).
  22. UKCF Population 2004: Annual Data Report (University of Dundee and CF Trust Publication).
  23. Reports to the European Commission are produced as two peer reviewed publications in the Lancet (2010) 375: 1007–13 and in the Journal of Cystic Fibrosis (2010) as a Special Supplement on the EuroCareCF Registry.

 

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